Monday, February 2, 2009

FUP

I am seriously considering getting this. I'd like to get this, but I have children and somehow it just wouldn't seem right. It's like the blogger says, if I get the first one, "cool people will understand."

So, just what is THIS all about? If you haven't already been entertained by one of the funniest things on the Internet, I present to you (drum roll please....)

FUCK YOU, PENGUIN!

Sometime in December, an old friend posted a link to this blog on Facebook and I haven't stopped laughing since. I worked my way back to the beginning and anxiously await new posts with bated breath. And when the waiting gets to be too much, I simply go back and read some of the real gems like these two.

Yes, I know it might be offensive to some (the language is quite obscene at times), but I don't care. So, let me keep this short so you can get to laughing. I for one am going to go reread Dec. 16.

Sunday, February 1, 2009

Official Diagnosis: Spastic Quadriplegic Cerebral Palsy

On Thursday, Cadence saw the same doctor she saw a year ago who shocked me with the words Cerebral Palsy. Although I knew this was a possibility at the time, I felt like she had been progressing. Time has certainly proven him right in the regard that she clearly has severe physical delays and challenges. I've accepted this, but still hold out hope for continued effort and improvements on her part.

So when visiting with him this week, he said overall she looked healthy. I asked him for an official diagnosis and he gave me one: Spastic Quadriplegic Cerebral Palsy. He said "spastic" meaning tightness and rigidness in her movements and "quadriplegic" meaning it affects all four limbs. He also said something about how the more involved the CP, the more likely the child's cognitive function will be low.

From: http://www.cerebralpalsy.org/types-of-cerebral-palsy/

Spastic Cerebral Palsy

Spastic Cerebral Palsy is the most common diagnosis. If your child’s CP is “spastic,” her muscles are rigid and jerky, and she has difficulty getting around. There are three types of spastic Cerebral Palsy:

Spastic diplegia — Your child’s leg and hip muscles are tight, and his legs cross at the knees, making it difficult to walk. This kind of movement is frequently referred to as “scissoring.”

Spastic hemiplegia — Only one side of your child’s body is stiff. Her arms or hands might be more affected than her legs. On the affected side, her arm and leg may not develop normally. She may also require leg braces.

Spastic quadriplegia — The severest of the three, spastic quadriplegia means that your child is more likely to have mental retardation if diagnosed as quadriplegia. His legs, arms, and body are affected. It will be difficult for him to walk and talk, and he may also experience seizures.

Mental retardation?

Really?

I don't know about that one. I mean, I guess it's possible, but she seems so alert, aware. She's very visual, understands many commands, can recognize pictures and faces in books by both fixing her gaze on them and attempting to "get them" with her closed fist. She recognizes songs she likes and she gets excited when she sees or hears dads voice when he gets home from work.

So, ok...she doesn't talk yet, but I've been lead to believe this is more likely due to the fact that she physically can't yet, not because she doesn't want to or has nothing to say.

When he first brought up this possibility (he never used the words "mental retardation"), I thought, "No way." But, just as the last year has proven him right the first time, I am wondering how right he might be again. I can't help but wonder if the fact that she still doesn't nod or shake her head "yes" and "no" are simply physical impairments, or is she really suffering from severe cognitive delays as well?

I know, I know...time will tell. I've heard it all before. I'm just sick of waiting.